Today is International ME/CFS Awareness Day. I’ve written a lot about my experiences living with Chronic Fatigue Syndrome and Fibromyalgia. I was diagnosed at 12, and the first 5 years were the toughest of my life. Back in 2010, I wrote another post for ME/CFS Awareness Day about how art helped me find purpose in [...]
Tag Archives: me
Mine.
July 13, 2010 – 2:29 pm
I am, occasionally, accused of working too much (usually by well-meaning friends). It’s probably true. I work a lot. Longer than 8 hour days, by far. Probably closer to 10-12. But it doesn’t usually feel like work to me. This is what I’d be doing for fun if I had a cubicle job. [...]
Painting the roses, healing my soul
June 22, 2010 – 6:27 pm
I woke up this morning, early. It happens sometimes when my sleep is drug induced – I was in so much pain yesterday I had to take sleeping pills last night to get any kind of relief. I pottered around for a few hours, did some web design work and then wandered into the living [...]
Just keep on plodding.
June 21, 2010 – 10:52 am
Well, my stomach finally seems to be healing. Between the trifecta of omeprazole, the probiotics and the digestive enzymes, as well as a carefully monitored diet, it should have all the help it needs to start setting itself to rights again. My body, on the other hand, has been left in a much worse state. [...]
Meeting myself where I am.
May 26, 2010 – 3:07 pm
Monday was a long weekend here in Canada, and it was a beautiful one – warm, sunny, and smelling of spring. A friend called me up and armed with camera and sketchbook, we walked down to Victoria Park, a public park that runs along the edge of the harbour. It’s pretty big, so you can [...]
Giving my life a purpose
May 12, 2010 – 1:13 pm
Today is International ME/CFS Awareness Day. It’s a timely reminder of why I’m an artist, and why I do what I do. I don’t really know why other people choose art. I didn’t choose it because I wanted to say something, or had some vision to express (although those things are still true for me). [...]
Anniversaries.
January 15, 2009 – 11:07 am
I know why I couldn’t write yesterday. It was the 8 year anniversary of the day I got sick. I’d consciously forgotten, but my body remembered. And I felt antsy, and stuck, and unable to write. I felt sad. My body felt sad. It’s just one of those things that you have to go through [...]
