Eleven years ago today, I got sick. The emotional effects didn’t hit me till weeks later, but today was the day it started – 11pm at night, suddenly awake and feeling ill. And then that feeling just never going away. It’s been a long road to the place where I am now. Last year felt [...]
I am, occasionally, accused of working too much (usually by well-meaning friends). It’s probably true. I work a lot. Longer than 8 hour days, by far. Probably closer to 10-12. But it doesn’t usually feel like work to me. This is what I’d be doing for fun if I had a cubicle job. [...]
Recently, I was afraid someone was going to prevent me from participating in something because of my CFS. In the end, the decision was left up to me, but it pushed all of my buttons. It was like I imploded. Something inside collapsed, and all I could feel was sad, discouraged, listless. Sometimes I forget [...]
Monday was a long weekend here in Canada, and it was a beautiful one – warm, sunny, and smelling of spring. A friend called me up and armed with camera and sketchbook, we walked down to Victoria Park, a public park that runs along the edge of the harbour. It’s pretty big, so you can [...]
I’m not going to have a list of awesome things today. I had a huge, gigantic, crazy-but-probably-totally-obvious-to-anyone-who-knows-me revelation about myself this morning, and I kind of need to talk about it right now, because I’m still trying to make sense of it. I give myself away. I spoke the other day about how I often [...]
I’ve written a few articles about Chronic Fatigue Syndrome and how it affects your life and how to cope. I often seem like I have my shit together. Some days I do. Some days I don’t. I know more than I used to. I still don’t know everything. Today, my entire body hurts. My brain [...]
