Today is International ME/CFS Awareness Day. I’ve written a lot about my experiences living with Chronic Fatigue Syndrome and Fibromyalgia. I was diagnosed at 12, and the first 5 years were the toughest of my life. Back in 2010, I wrote another post for ME/CFS Awareness Day about how art helped me find purpose in my life and gave me a reason … [Read more...] about ME/CFS Awareness Day: 11 things of gratitude for 11 years of illness
I am, occasionally, accused of working too much (usually by well-meaning friends). It's probably true. I work a lot. Longer than 8 hour days, by far. Probably closer to 10-12. But it doesn't usually feel like work to me. This is what I'd be doing for fun if I had a cubicle job. This is what I would choose to do over almost every other activity. I … [Read more...] about Mine.
I woke up this morning, early. It happens sometimes when my sleep is drug induced - I was in so much pain yesterday I had to take sleeping pills last night to get any kind of relief.I pottered around for a few hours, did some web design work and then wandered into the living room to look out the bay window, see if anything interesting was … [Read more...] about Painting the roses, healing my soul
Well, my stomach finally seems to be healing. Between the trifecta of omeprazole, the probiotics and the digestive enzymes, as well as a carefully monitored diet, it should have all the help it needs to start setting itself to rights again.My body, on the other hand, has been left in a much worse state. I am exhausted. Like sleep for 9 hours and … [Read more...] about Just keep on plodding.
Monday was a long weekend here in Canada, and it was a beautiful one - warm, sunny, and smelling of spring. A friend called me up and armed with camera and sketchbook, we walked down to Victoria Park, a public park that runs along the edge of the harbour. It's pretty big, so you can wander around for quite a while.Well, we "wandered around" for … [Read more...] about Meeting myself where I am.
Today is International ME/CFS Awareness Day. It's a timely reminder of why I'm an artist, and why I do what I do. I don't really know why other people choose art. I didn't choose it because I wanted to say something, or had some vision to express (although those things are still true for me). I chose it because I needed a reason to live. I … [Read more...] about Giving my life a purpose
My job at the health food store is starting to wear me out. I find I'm spending just as many days recovering from working as I am working. Which means I'm losing 4-6 days a week. I'm starting to resent my job. This happened last time I worked too - 6 to 8 weeks in, my body starts to crumble. It just can't handle it anymore. I worked 3 days … [Read more...] about Maybe not such a working girl.