Ughhhh, hungryyyy. Welcome to Day 5 of Total Bed Rest. I’ve been living on the BRAT* diet for the past 5 days, excepting an unfortunate foray into the world of salad. *BRAT – bananas, rice, apples and toast. Mostly toast. I’m bored senseless. I’m an absolutely awful patient. Unless I’m so sick that all I [...]
Category Archives: Coping With Chronic Illness
A Letter to My Stomach
June 14, 2010 – 5:59 pm
Dear Stomach, We don’t seem to be getting along right now, do we? You’ve been kinda hurt-ey since February, and trying to get my attention with some small aches and pains and I wasn’t a very good owner, and I ignored you. I kept putting off going back to the doctor and getting more of [...]
Meeting myself where I am.
May 26, 2010 – 3:07 pm
Monday was a long weekend here in Canada, and it was a beautiful one – warm, sunny, and smelling of spring. A friend called me up and armed with camera and sketchbook, we walked down to Victoria Park, a public park that runs along the edge of the harbour. It’s pretty big, so you can [...]
Giving my life a purpose
May 12, 2010 – 1:13 pm
Today is International ME/CFS Awareness Day. It’s a timely reminder of why I’m an artist, and why I do what I do. I don’t really know why other people choose art. I didn’t choose it because I wanted to say something, or had some vision to express (although those things are still true for me). [...]
Helplessness
March 23, 2010 – 12:02 pm
Oh helplessness. You and me have a long, and colorful history. You’ve been by my side, hanging out for over 9 years now. And I’m sure that you’ve served a good purpose, somewhere, somehow. I’m sure you’ve tried to protect me in some way. But it might be time for you to move along now, [...]
Miles ahead
January 19, 2010 – 10:23 am
Last week, January 14th happened and I missed it completely. I’m shocked, pleased, all manner of things. Mostly happy. It got lost in the flurry of finding my gorgeous new apartment and planning the move. Compared to 4 years ago, this is a miracle. What are you talking about, Sarah? January 14th, 2001 was the [...]
Maybe not such a working girl.
October 14, 2009 – 7:39 am
My job at the health food store is starting to wear me out. I find I’m spending just as many days recovering from working as I am working. Which means I’m losing 4-6 days a week. I’m starting to resent my job. This happened last time I worked too – 6 to 8 weeks in, [...]
Picking up the pieces.
August 12, 2009 – 8:39 am
I hit rock bottom yesterday. There just reaches a certain point, and you can’t push yourself any further. For the first time in 3 years, I honestly felt like giving up. All I wanted to do was hide under the covers and stare at the wall and hope that somehow, some way, someone with a [...]
What mold are you trying to fit into?
March 24, 2009 – 9:53 am
My about page gets either one of two reactions: 1. Wow, you’ve been through so much and it’s completely amazing and you totally inspire me, thanks for sharing. Or, 2. How could you share that on the computer? How could you tell lots of people that? You shouldn’t be sharing that with people. It’s shocking. [...]
It's time for a facelift. Or maybe a "Life Lift"
January 28, 2009 – 9:40 am
I’ve got two completely unassociated topics floating around my head today. Not sure if I can link them up, but they’re both clamoring to be written about, so I guess today you’re going to get a schizophrenic post. First up: my website I’ve redesigned my website so many times, it’s actually a running joke with [...]
